At EBRP, we have one bold audacious goal: cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. ​With the generous support of people like you, Tom Holland, and The Brothers Trust, EBRP achieved a record breaking year in 2023 for dollars raised and research funded. We raised more than $8 million to fund 18 innovative research projects across 5 countries. We're excited to continue this momentum in 2024. Learn more at
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At EBRP, we have one bold audacious goal: cure EB by 2030. I…
904 viewsFeb 2, 2024
FacebookEB Research Partnership
21 reactions · 16 shares | Momentum is everything. We can cure EB — and pave a path for thousands of other rare diseases. Those living with EB deserve to live a pain free life. They deserve to fly. Join us as we #VentureIntoCures at ebresearch.org | EB Research Partnership | Facebook
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21 reactions · 16 shares | Momentum is everything. We can …
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FacebookEB Research Partnership
At the 2nd annual #VentureIntoCures in 2021, Mayim Bialik interviewed Dr. Jean Tang and Dr. Andy South who are working to find a cure for Epidermolysis Bullosa. Since then we've seen remarkable progress on our mission towards a cure, including two FDA approved EB treatments. Our goal is to cure EB by 2030. Help us reach that goal by making a donation to life-saving research at https://give.ebresearch.org/give/335486?c_src=Facebook | EB Research Partnership | Facebook
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At the 2nd annual #VentureIntoCures in 2021, Mayi…
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FacebookEB Research Partnership
49 reactions · 37 shares | Rare Disease Day is Fri, Feb. 28. Join Keanu Reeves, Kristen Bell, Ed Sheeran, John Legend and others to help find a cure for Epidermolysis Bullosa (EB), a series of life-threatening rare genetic disorders affecting the skin. | EB Research Partnership | Facebook
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49 reactions · 37 shares | Rare Disease Day is Fri, Feb. 28. Join K…
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4K views · 48 reactions | 曆 ANNOUNCEMENT 曆 EB Research Partnership...
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4K views · 48 reactions | 曆 ANNOUNCEMENT 曆 EB Researc…
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FacebookEB Research Partnership
28 reactions | #VentureIntoCures is just one month away! 曆❤ Check out our action-packed 3 day agenda at bit.ly/VICSeattle2023 | EB Research Partnership | Facebook
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28 reactions | #VentureIntoCures is just one month away! 曆❤ C…
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FacebookEB Research Partnership
5.3K views · 232 reactions | At #VentureintoCures 2021, @brandicarlile shared some beautiful words and music dedicated to those living with EB 曆 Join us in our critical mission to #HealEB at ebresearch.org | EB Research Partnership | Facebook
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5.3K views · 232 reactions | At #VentureintoCures 2021, @brandi…
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FacebookEB Research Partnership
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Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a...
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FacebookAnna Chacon, MD FAAD
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128K views · 1.5K reactions | Big time gamer That Geek Aaron and …
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FacebookEB Research Partnership
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